Council on Research and Evaluation (CORE)



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The CORE serves as a focus for the identification and discussion of issues regarding research and evaluation; serves as a representative voice of the research and evaluation activities within the AUCD Network; and influences the development and implementation of initiatives relevant to achieving and sustaining appropriate research and evaluation activities to guide the development of national policies.


How CORE Relates to AUCD and Its Work

The CORE fulfills its purpose and the mission of AUCD and its constituent membership by serving as a conduit for technical assistance, providing input into policy, and engaging in other support activities deemed necessary to advance the mandate for research and evaluation. The Council helps the association to:

  • Set and accomplish its research goals specified in the AUCD Strategic Map.
  • Carry out training activities to inform network members on important and emerging research and evaluation topics.
  • Develop the research capacity of each network member to conduct quality research and sound evaluation activities.
  • Identify topics of common interests to network members and develop recommendations to the AUCD Board.
  • Lead the Network in involving people with disabilities and their family members to participate in research and evaluation activities.



The Council on Research and Evaluation, known as CORE, is made up of individuals whose work is related to or who is interested in research and evaluation. CORE members are from each Center and program across the AUCD network. Membership is open to anyone in the AUCD network who chooses to join the CORE by selecting the CORE in their AUCD Directory. Each network member can also designate an individual representative who will cast one vote when a matter before the Council requires such an action. Members of the CORE are expected to attend the membership meeting during AUCD Annual Conferences and quarterly conference calls.


2018 Focus Areas

The 2018 CORE annual plan includes:

  • Involving individuals with disabilities as researchers in research teams by developing recommendations for working with university IRBs, by sponsoring a Driving Change session on this topic during the 2018 AUCD Conference, and by editing a book focusing on participatory research.
  • Providing training to Network members on how to evaluate the UCEDD core grants.
  • Develop recommendations to the Network on accessible methods of data visualization for people with disabilities.

CORE Leadership

Chair: Ronda Jenson, Ph.D.



Upcoming Events of Interest to CORE Members

Summer Institute on Theology and Disability 2019  Copy to Calendar
Monday, May 20, 2019 - Thursday, May 23, 2019

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NEW on the CORE
Web Pages



Autism Issue Briefs from Waisman Center UCEDD/LEND

Two publications describing evidence-based approaches to improving services for autism spectrum disorders are available online from the Waisman Center UCEDD/LEND programs as part of a series of Issue Briefs and Study Briefs.



A Woman's Voice: Understanding Autistic Needs

The National Institute of Mental Health (NIMH) Office of Autism Research Coordination (OARC) is pleased to invite you to attend our annual special event to recognize National Autism Awareness Month, A Woman's Voice: Understanding Autistic Needs.



Effects of Propranolol on Conversational Reciprocity in Autism Spectrum Disorder: A pilot, double-blind, single dose psychopharmacological challenge study

Zamzow RM, Ferguson BJ, Stichter JP, Porges EC, Ragsdale AS, Lewis ML, Beversdorf DQ

Pharmacological intervention for autism spectrum disorder (ASD) is an important addition to treatment, yet currently available agents target co-morbid psychiatric concerns, such as aggression and irritability. Propranolol, a beta-adrenergic antagonist with anxiolytic effects, has been shown to improve verbal fluency and working memory in adults and adolescents with ASD in single-dose challenges.



Family & Professional Resources & Developments for Rural and Underrepresented Communities within Northern California

Northern California is uniquely positioned to serve a diverse community of historically underrepresented children and families, as well as professionals within rural communities. As members within a majority minority state, we strive to continue learning about the complex intersection of disability, diversity, and inclusion as we actively develop culturally sensitive services and programs. We wish to highlight the strides that our staff members have taken in our diversity and inclusion efforts in several programs related to family support and service navigation, research and professional training specific to diverse and rural populations.

Pang Chaxiong, MNLEND, and Alefyah Shipchandler, MN ADDM GRA, will present at INSAR in May 2019, with ICI's Dr. Jennifer Hall-Lande.


Improving Initial Age of Diagnosis for Children from Culturally and Linguistically Diverse Communities: Asking Parents

Pang Chaxiong (MN LEND Fellow), Alefyah Shipchandler, (graduate research assistant), and Dr. Jennifer Hall-Lande (researcher and MN LEND faculty), all with the Institute on Community Integration, University of Minnesota, will be presenting a poster-- Improving Initial Age of Diagnosis for Children from Culturally and Linguistically Diverse (CLD) Communities: Asking the Parents-- at this year's INSAR meeting in Montreal, Canada in May.



New Pediatric Sleep Education Modules - Developed by the Pediatric Pulmonary Centers

We are pleased to share a new resource, the Pediatric Sleep Education Modules, developed by the HRSA-funded Pediatric Pulmonary Centers. The modules are free, online, self-directed, training modules related to the care of pediatric sleep patients. CMEs are provided for completing the modules, which can be done individually or as a group.



When an Early Diagnosis of Autism Spectrum Disorder Resolves, What Remains?

A chart review was performed of 38 children diagnosed with autism spectrum disorder (ASD) by 3 years of age at an inner-city developmental program who subsequently experienced resolution of ASD symptomatology and no longer met diagnostic criteria for ASD at follow-up an average of 4 years later. Demographic, developmental/cognitive data, Childhood Autism Rating Scale, and Autism Diagnostic Observation Schedule data as available were reviewed from the initial diagnostic evaluation and at the time of follow-up.

Janne Sigel (left) Karen Bonuck (right)


Leadership Transitions at the UCEDD in Bronx NY

As of January 2019 Joanne Siegel, LCSW became Co-Director (previously Associate Director) and Karen Bonuck, PhD became Director (previously Co-Director) of the UCEDD, which is based in the Rose F. Kennedy Children's Evaluation and Rehabilitation Center (RFK CERC). Ms. Siegel, who is a Principal Associate (faculty) in the Department of Pediatrics at Einstein College of Medicine-Montefiore Medical Center moves to this new leadership role after 40+ years at RFK CERC.



Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) Researcher Shares Largest Neuroimaging Dataset on Math Development

Vanderbilt University neuroscientist and VKC Investigator James R. Booth is making available the largest known neuroimaging dataset on math development. His goal in doing so is to support the work of other researchers across the world who are working to understand how arithmetic skills develop in childhood.



Now Archived: Winter Webinar Series from AUCD's Autism Special Interest Group

AUCD's Autism Special Interest Group (SIG) presented its winter webinar series. The goal was to share new and innovative work from AUCD member programs from across the country in brief, accessible presentations tied together across a common topic, and to support conversation around each.



Call for Art Submission: Disability and Shame (HI UCEDD/LEND)

Genesis Leong University of Hawaiʻi at Mānoa, Center on Disability Studies

The Review of Disability Studies: An International Journal is issuing a Call for Art Submissions to be included in the special forum on the subject of shame and disability, broadly conceived. It is hoped that through critical discourse addressing the historical and current contexts, contributing factors, effects, and responses to shame, greater understanding of this phenomena will diminish discrimination and violence.



Study Finds that Psychiatric Emergency Room Visits Increased Among US Youth (MD IDDRC)

In a recent study published in Pediatrics, Luther Kalb, PhD, core faculty member of the IDDRC at the Kennedy Krieger Institute, examined trends in psychiatric emergency department (ED) visits from 2011 to 2015 among youth ages 6 to 24 in the U.S. Data for this study primarily came from the National Ambulatory Medical Care Survey, a national survey of ED visits across the US.



AUCD Emerging Leaders Map 2019

Website  from
"Centering People with Disabilities/Disabled People"

"Centering" means that PWD/DP are at the core of our work. It requires actively listening to and respecting people with disabilities/disabled people and their needs and wants within our communities. The Map highlights diverse trainees and early career leaders across AUCD's network. Each person was selected for inclusion on the map based on their contributions to the network, how they have demonstrated leadership, and their values and commitment to diversity, inclusion and respect for others.


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