AUCD 360 - February 2019

February 8, 2019

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
February 2019  |   Volume 4 Issue 2
AUCD 360, News from Around the Network, Facebook  AUCD 360, News from Around the Networkspace

  Central Office News

  Network Awards

  Network News

  Emerging Leaders Voices

  Community Updates

  Upcoming Events 

 
  AUCD Central Office News

 

AUCD for All 2019 Gala: Celebrating Leadership in Civil Rights

AUCD for All 2019 Gala: Celebrating Leadership in Civil RightsMarch 19, 2019, Washington, DC

Join the Association of University Centers on Disabilities (AUCD) for its annual AUCD for All Gala to celebrate Leadership in Civil Rights For our centers and programs across the country, the core civil rights vision of the ADA and other disability rights laws informs the approach we take to improving the lives of children and adults with disabilities and their families.
Read more... 

 

Disability Policy Seminar 2019 and AUCD Policy Forum

Would you like to be a CDC April 7-10, 2019, Washington, DC

The Disability Policy Seminar hosted by The Arc, UCP, AUCD, AAIDD, NACDD, and SABE is the premier opportunity to cultivate champions on Capitol Hill and advance the grassroots movement for people with intellectual and developmental disabilities. For 40 years, this unique platform has offered the opportunity to come together with passionate advocates, self-advocates, experts, and professionals in the field to learn about key issues. All AUCD Emerging Leaders, including Trainees, are invited to a pre-DPS Policy Forum on Sunday afternoon.
Read more... 

 

AUCD Leadership Academy

Would you like to be a CDC June 23-28, 2019, Atlanta GA

The AUCD Leadership Academy is a week-long program designed to enhance the skills of current and emerging leaders from the disability network to build coalitions to improve systems of supports and services. The Leadership Academy seeks participants from UCEDDs, LENDs, and their disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development.
Read more... 

 

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  Network News -  Awards


Laura Bozeman Receives 2018 Father Carroll Award
 

Laura Bozeman Receives 2018 Near Father Carroll AwardThe School for Global Inclusion and Social Development's Dr. Laura Bozeman was named the 2018 Father Carroll Award recipient at the Northeast Regional Association and Rehabilitation of the Blind and Visually Impaired regional conference. This award recognizes exemplary performance where efforts of the individual have had a significant impact on the lives of people with visual impairment. The recipient may be a professional or volunteer with a minimum of ten years of service. The recipient must be known as outstanding and have a reputation as an innovator, a mover, a shaker, and have a positive impact on the lives of people with visual impairment. Read more...

 

Carrie Coffield, PhD (NJ UCEDD) Honored with Parent-Professional Collaboration Award 

Carrie Coffield, PhD (NJ UCEDD) Honored with Parent-Professional Collaboration AwardCarrie Coffield, PhD, Assistant Professor of Pediatrics at The Boggs Center, Rutgers Robert Wood Johnson Medical School, Malia Corde, Statewide Parent Advocacy Network (SPAN), Deepa Srinivasavaradan, SPAN, and Ericka Dickerson, NJ Department of Children and Families, were honored with the Parent-Professional Collaboration Award by SPAN and the Community of Care Consortium. The award was presented at the most recent meeting of the Council for Young Children's Infant and Child Health Committee on Wednesday, March 16, 2016 for work on behalf of enhancing early screening for families served by Federally Qualified Health Centers, early childhood centers, and home visiting programs in New Jersey. Read more...

 

VKC (TN IDDRC/UCEDD/LEND)'s Verity Rodrigues to serve on National Mental Health Advisory Board 

VKC (TN IDDRC/UCEDD/LEND)'s Rodrigues to serve on National Mental Health Advisory BoardVerity Rodrigues, M.S., Ph.D., educational consultant and instructor in Pediatrics at the Vanderbilt Kennedy Center's (TN IDDRC/UCEDD/LEND) reatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD), has been selected to participate on the advisory board for the National Training Center on Mental Health and Intellectual/Developmental Disabilities (MHIDD). The project is funded by a 3-year federal grant awarded to the University of Kentucky Institute for Human Development, in collaboration with the University of Alaska Anchorage and Utah State University. The purpose is to establish a national training center that will build workforce and community capacity to support individuals with mental illness and intellectual/developmental disabilities.  Read more...

 

Jenness Roth Promoted to Associate Director at the Boling Center for Developmental Disabilities (TN UCEDD) 

VKC (TN IDDRC/UCEDD/LEND)'s Rodrigues to serve on National Mental Health Advisory BoardJenness Roth has been promoted to the position of Associate Director at the Boling Center for Developmental Disabilities at the University of Tennessee Health Science Center (UTHSC). Jenness brings over 20 years of experience to the position, including several years of management experience as the executive director of a statewide non-profit that serves people with developmental disabilities and their families. For the last nine years, she was the Family Faculty Coordinator for the Boling Center and is the parent of a 32-year-old son with autism and an intellectual disability. Read more...

 

Longtime Director of VKC (TN IDDRC/UCEDD/LEND) Communications Retires; Taylor Named as Successor 

VKC (TN IDDRC/UCEDD/LEND)'s Rodrigues to serve on National Mental Health Advisory BoardJan Rosemergy, Ph.D., deputy director and director of Communications and Dissemination at the Vanderbilt Kennedy Center (TN IDDRC/UCEDD/LEND), has announced her retirement from a position she has held since 1979. For more than 39 years, Rosemergy has diligently directed the dissemination of knowledge about intellectual and developmental disabilities from the Vanderbilt University (VU) and Vanderbilt University Medical Center (VUMC) campuses to diverse local, state, and national audiences. Courtney Taylor, M.Div., has been named VKC director of Communications and Dissemination.  Read more...

 

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  Network News


New Early Intervention Training Program (Georgetown UCEDD)

New Early Intervention Training Program (Georgetown UCEDD)

The Georgetown UCEDD has added a new partnership and program to their interdisciplinary pre-service preparation and training activities called GEORGE (Graduate Education of Related Service Providers at Georgetown and George Washington Universities in Early Intervention). With support from a grant from the U.S. Department of Education, Dr. Toby Long along with faculty from the GUCEDD, George Washington and Catholic Universities, has incorporated interdisciplinary pre-service program students into our existing Georgetown University Graduate Certificate in Early Intervention (GUCEI) Program. Read more...

New Business Engagement Compendium, Online Courses, and More! (MA UCEDD/LEND)

New Business Engagement Compendium, Online Courses, and More! (MA UCEDD/LEND)

ICI senior policy staff and University of Washington partners continue to offer technical assistance (TA) on Business Engagement and Labor Market Information through the Workforce Innovation TA Center (WINTAC). New online learning resources have been added to ExploreVR's Business Engagement Toolkit to provide Vocational Rehabilitation (VR) practitioners access to more resources that help promote the understanding of business engagement concepts, assess the knowledge of business relations staff, and provide an overview of VR agency models across the country. Read more...

AK, KY & UT UCEDDs Collaborate on ACL Mental Health Grant

AK, KY & UT UCEDDs Collaborate on ACL Mental Health Grant

A collaboration between the Alaska, Kentucky, and Utah UCEDDs will offer training opportunities for self-advocates, family members, direct service providers, and mental health and healthcare professionals to provide quality mental health services to people with intellectual and developmental disabilities (IDD). The 3-year, $2.1 million project is being funded by the Administration for Community Living (ACL).The National Training Center for Mental Health and Intellectual and Developmental Disabilities (NTC-MHIDD) will offer an extensive online training portal, in-person trainings at major conferences, and an on-site leadership institute in MHIDD for UCEDD/LEND staff and trainees. Continuing Education Units (CEUs) and Continuing Medical Education (CMEs) will be available. Read more...

New Brief About the Status and Outcomes of People with IDD in Integrated Employment (MA UCEDD/LEND)

New Brief About the Status and Outcomes of People with IDD in Integrated Employment (MA UCEDD/LEND)

The Institute for Community's ThinkWork project partnered with National Core Indicators to create a brief looking at the status and outcomes of people with IDD in integrated employment. Read more...

 

Rural Insitute for Inclusive Communities Awarded Prize to Develop Healthcare Communication Tool (MT UCEDD)

Rural Insitute for Inclusive Communities Awarded Prize to Develop Healthcare Communication Tool (MT UCEDD)

The award enables the Montana Team to pursue development of an electronic Pediatric Medical Passport, or MP2, a web-based tool to improve communication between healthcare providers and families of children with special health care needs. The group applied for the Health Resources and Services Administration (HRSA) grant to address the difficulty in bringing provider, family and technology perspectives together. They will spend the next several months developing their product to compete for further funding. Dr. Sarah Holexa, a pediatric hospitalist in Missoula said, "We are hopeful that this opportunity will give families a strong, shared voice in the care of their children with complex healthcare needs in Montana." Read more...


IU Research Study Concludes that Inclusive Classroom Placements Result in Higher Academic Outcomes for Students with Disabilities (IN UCEDD)

IU Research Study Concludes that Inclusive Classroom Placements Result in Higher Academic Outcomes for Students with Disabilities (IN UCEDD)

Indiana students with disabilities included in general education classrooms do significantly better on Indiana state assessments than their peers placed in separate special education classrooms, an Indiana University research study concludes. The study, conducted by the Center on Education and Lifelong Learning at the Indiana Institute on Disability and Community, followed a cohort of Indiana students with disabilities, from third through eighth grade, to assess the relationship between special education placement in high, mixed, and low inclusive classrooms and academic success. Read more...

 

Institute on Disability Receives Challenge Grant for an Inclusive College Program (NH UCEDD/LEND)

Institute on Disability Receives Challenge Grant for an Inclusive College Program (NH UCEDD/LEND)

The Institute on Disability (IOD) at the University of New Hampshire (UNH) has been awarded a $150,000 grant from the John Vance ACCESS Fund, a donor-advised fund of the New Hampshire Charitable Foundation, to support the implementation of the UNH-4U program, a new initiative providing an inclusive college experience to students with intellectual disabilities. The IOD is currently seeking an additional $150,000 in matching contributions necessary to begin the admissions process for students. Read more...

 

OHSU UCEDD Hosts Transition Town Hall

OHSU UCEDD Hosts Transition Town Hall

On January 29, community members came together to have conversations, share best practices, and learn from one another about how to best support young people with disabilities through one of life's most crucial stages. The UCEDD at Oregon Health & Science University (OHSU) Institute on Development and Disability hosted a community town hall to highlight transition resources available for families, professionals, and providers. This event was in partnership with Autism Speaks and Autism Society of Oregon, and included sponsorship from the Tiffany Foundation. Beginning with a resource fair and hors d'oeuvres, the evening featured a panel of 7 experts who engaged in a rich discussion and Q&A session about their experience with the transition process in Oregon. Read more...

 

The Center for Leadership in Disability Co-Hosts 11th Annual Georgia Positive Behavior Support Conference (GA UCEDD)

The Center for Leadership in Disability Co-Hosts 11th Annual Georgia Positive Behavior Support Conference (GA UCEDD)

The Center for Leadership in Disability (CLD), housed within the School of Public Health at Georgia State University (GSU), co-hosted the 11th-annual Georgia Association for Positive Behavior Support (GAPBS) conference on December 5-6, 2018 at the Georgia World Congress Center. The 2018 GAPBS conference had over 1,500 attendees, representing over 103 Georgia school districts. GAPBS is a network state under the national Association for Positive Behavior Support (www.apbs.org). Read more...

 

MCDD Presentation for Project SEARCH Interns (MD UCEDD)

MCDD Presentation for Project SEARCH Interns (MD UCEDD)

Maureen van Stone, the Director of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, delivered a presentation about the importance of advocacy to Kennedy Krieger's Project SEARCH interns and staff (pictured). Project SEARCH interns will participate in Maryland's 2019 Developmental Disabilities Day at the Legislature on February 13th in Annapolis, Maryland. Read more...

 

Rubinstein-Taybi Syndrome (RTS) Event at the Newport Aquarium (OH UCEDD)

Rubinstein-Taybi Syndrome (RTS) Event at the Newport Aquarium (OH UCEDD)

On the last weekend in January, the UCCEDD at Cincinnati Children's hosted an RTS booklet release party at the Newport Aquarium, drawing over 100 guests from as far as Michigan, Illinois and Tennessee as well as regional guests from Indiana, Kentucky and Ohio! The booklet, "Understanding Rubinstein-Taybi Syndrome: A Guide for Families and Professionals" was developed to help family members of children with Rubinstein-Taybi Syndrome better explain their child's condition to healthcare providers, teachers and family members. Read more...

 

 

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  Emerging Leader Voices


Learning from Each Other: The Iowa LEND and Puerto Rico UCEDD Collaboration

Learning from each other: The Iowa LEND and Puerto Rico UCEDD collaboration

Best practice in the assessment and treatment of challenging behavior for individuals with intellectual and developmental disabilities includes using applied behavior analysis (ABA), specifically implementing functional behavioral assessments and function-based treatments. These types of assessments and interventions are implemented typically by board certified behavior analysts (BCBA®) and by psychologists with training in this area. Currently in Puerto Rico, there is a lack of access to trained providers and local training programs in ABA. Read more...


Helping Babies Beyond Their First Year: A Day of Learning (WI LEND)

Helping Babies Beyond Their First Year: A Day of Learning (WI LEND)

In Milwaukee, WI, 100 infants die before reaching their first birthday. Infant mortality disproportionately affects more Black infants than White infants in Milwaukee due to a variety of social, medical, and other complex factors. The Strong Baby Sanctuary is a network of faith-based organizations that are addressing this multifaceted issue by engaging the community in education, healthcare, and wellness. The Strong Baby Sanctuary particularly supports education surrounding prematurity, a major contributor to infant deaths, and safe sleeping environments. Read more...

 

 

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  Community Updates

 

PCPID to Host Virtual and In-Person Meetings

The President's Committee for People with Intellectual Disabilities (PCPID) will host a series of meetings to discuss their 2019 report to the President. A virtual meeting will be held on March 4th, 11am-12:30pm ET. To listen in, call 888/949-2790 and use the pass code 1989852. In-person meetings will be held on March 21st and 22nd, 9:30am-4:30pm ET each day, at the Hubert H. Humphrey Building in Washington, DC. The same call-in option will be available for these meetings to listen remotely. Read more...


 

 

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  Upcoming Events

 

EPM-RRTC State of the Science and Annual Disability Statistics Compendium Event

EPM-RRTC State of the Science and Annual Disability Statistics Compendium Event

February 12-13, 2019, Washington DC

Registration is FREE. The EPM-RRTC State of the Science and Annual Disability Statistics Compendium offers both in-person and webcast participation options. Please register if you plan to attend in-person or via webcast. The agenda, presenters, and logon procedures (for web viewers) will be emailed to you as they become available. Read more...


Pacific Rim International Conference on Disability and Diversity

Call for Proposals - Pacific Rim International Conference on Disability and Diversity

March 4-5, 2019 Honolulu, HI

PacRim has been bringing people together for more than 30 years. And PacRim 2019 is no exception. We want individuals with disabilities, their families, service providers, researchers, educators, employers, deep thinkers, change agents, policy makers and entrepreneurs to join us in March 2019. Only by coming together and sharing can we offer individuals with disabilities a better future.
Read more...

AUCD for All 2019 Gala: Celebrating Leadership in Civil Rights

AUCD for All 2019 Gala: Celebrating Leadership in Civil Rights

March 19, 2019, Washington, DC

Join the Association of University Centers on Disabilities (AUCD) for its annual AUCD for All Gala to celebrate Leadership in Civil Rights For our centers and programs across the country, the core civil rights vision of the ADA and other disability rights laws informs the approach we take to improving the lives of children and adults with disabilities and their families. Read more...

The Spectrum of Developmental Disabilities XLI: Disorders of Higher Cortical Function in School: Learning, Attention, and Socialization

The Spectrum of Developmental Disabilities XLI: Disorders of Higher Cortical Function in School: Learning, Attention, and Socialization

March 18-20, 2019, Baltimore, MD,

The Spectrum of Developmental Disabilities LI: Disorders of Higher Cognitive Function in School: Learning, Attention, Socialization will be held March 18-20, 2019 at the Turner Auditorium of the Johns Hopkins University School of Medicine. Among the guest speakers for this interdisciplinary conference will be Jennifer Accardo, MD, Pasquale Accardo, MD, Priscila Cascola, PhD, Thomas Challman, MD, Jason Chow, PhD, Laurie Cutting, PhD, Guinevere Eden, PhD, James Kaufman, EdD, Thomas Lock, MD, Beatrix Luna, PhD, Lauren McGrath, PhD, Mary Morningstar, PhD, Scott Myers, MD, Sue Swenson, MBA, Daniel Willingham, PhD, Patrick Wolf, PhD, Frank Zelko, PhD. Read more...

 

Disability Policy Seminar 2019 and AUCD Policy Forum

Would you like to be a CDC April 7-10, 2019, Washington, DC

The Disability Policy Seminar hosted by The Arc, UCP, AUCD, AAIDD, NACDD, and SABE is the premier opportunity to cultivate champions on Capitol Hill and advance the grassroots movement for people with intellectual and developmental disabilities.  All AUCD Emerging Leaders, including Trainees, are invited to a pre-DPS Policy Forum on Sunday afternoon. Attendees will have exclusive access to Hill staffers and former trainees now working in policy, and learn from the experts how to best craft your message for Wednesday's Hill visits.
Read more...


AAIDD 143rd Meeting

AAIDD 143 Annual Meeting

June 24-27, 2019, Twin Cities, MN,

The 143rd AAIDD Annual Meeting will provide a forum for researchers, practitioners, policymakers, students and advocates to learn about innovations in our field that are being translated and implemented on a grander scale. Through knowledge translation we can change practices and policies through effectively communicating our research and creating change at all levels. In a political climate that is complex and dynamic, it is important to remain relevant through the thoughtful translation of our knowledge. Read more...

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  Submissions
button to submit articles to AUCD 360 form News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Intellectual and Developmental Disabilities (AIDD) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.