2019 Autism CARES Grantee Meeting

2019 Autism CARES Grantee Meeting


pdf File 2019 Autism CARES Meeting Agenda (205KB) [download]

pdf File Thursday Agenda Supplement (237KB) [download]

pdf File Friday Agenda Supplement (177KB) [download]

Thursday, July 18, 2019- Friday, July 19, 2019
Location: Washington, DC

The 2019 Autism CARES Meeting was held in-person on July 18-19 at the historic Mayflower Hotel in downtown Washington, DC.

This meeting was an opportunity for MCHB-funded CARES legislation grantees (representing research, training, and state demonstration stakeholders) to share information about activities within their respective networks, discuss emerging trends, and facilitate meaningful collaboration.

Meeting Theme: 

The theme for this year's meeting was Ten Years of Autism CARES Act Programs: Improving the Lives of People with ASD/DD, their Families, and Communities

The meeting was organized around three strands, described in plain language below:

  • "Increasing Equity" means making the system more fair. Some people with ASD/DD have a hard time accessing doctors, jobs and other services because of their race, income or other identities. This strand will focus on how we are making life better for people with disadvantages.
  • "Improving Systems Performance" means getting programs and providers to work together so more people can get their needs met, both now and in the future. People with ASD/DD often need many different services to help them live in their communities. This strand will focus on ways that programs connect with each other to reach common goals.
  • "Achieving Population-Level Outcomes" means making things better for whole communities, not just for one person at a time. We can measure how things are getting better with numbers like employment rates or school statistics. This strand will focus on how we know if we are improving life for whole groups of people.

Note about language: Recognizing that the autism community has diverse opinions about terminology related to the identities of autistic individuals/individuals with autism, we will be following the language used by Congress within the Autism CARES legislation: "individuals with autism spectrum disorder and other developmental disabilities" or the related abbreviation "ASD/DD."


The final verison of the 2019 Autism CARES Meeting agenda can be downloaded.

Plenary Speakers

The opening plenary did not have any slides. View below to see the other plenaries' slides:

Plenary II slides includes:

  • 2014-2017 CARES Evaluation Highlights by Leticia Manning
  • Grantee impact mini key-note presentations
    • Research: Judith Miller (PA) - framing by Elizabeth Morgan (CA)
    • Training: Karen Ward (AK) - framing by Michael Thornton (AR)
    • State Systems: Dafne Carnright and Ivanka Carbajal (DE) - framing by Joanee Qunn (RI)
  • Autism CARES Act 101 Modules by Kate Taft (AMCHP)

Plenary III slides include:

  • CARES Evaluation next steps by Lisa Hund and Monica Lathan-Dye
  • Policy update by Rylin Rodgers
  • Model roundtable discussion - "Partnerships and Collaboration with Communiity-Based Organizations"

Plenary IV slides include the closing keynote: "Washington State Systems of Care for Autism: Collaboration is in our DNA!" by Jen Gerdts, Michelle Hoffman, Jim Mancini, Kate Orville, Zack Siddeek

Concurrent Sessions

A complete list of accepted concurrent sessions is also included in the "Downloads" box at the top right of this page in the document titled "Thursday Supplement." Download concurrent session presentations below.


Select from the list below to view the electric (.pdf) copies of individual posters.

Increasing Equity

Improving Systems Performance

Achieving Population-Level Outcomes

Structured Networking Sessions
Open space notes, small group topics, and regional groups notes will be posted when available.

We would like to hear feedback from any event attendees who were not able to submit a paper evaluation on-site. To share thoughts about your experience, complete the 2019 CARES participant survey before July 31, 2019.

Event Information: 

This meeting was open to individuals representing the network of current (and former) MCHB-funded Autism CARES training, research, and state systems change grant recipients, as well as representatives from relevant federal agencies and invited organizational partners. 

These activities are hosted by AUCD's ITAC, in collaboration with AMCHP's SPHARC and HRSA-MCHB. For more information, please contact Ben Kaufman (bkaufman@aucd.org) at AUCD.


LEND Directors Meeting (Wednesday, July 17)

LEND Directors meeting was on Wednesday, July 17 from 10:00am - 5:00pm ET in the State Room at the Mayflower Hotel.  Please contact Ben Kaufman (bkaufman@aucd.org) at AUCD for more information. More specific information was sent to the LEND Directors e-mail listserv.